Friday, April 15, 2011

My Remarks About Graham at Dedication of Gravestone

Graham was a wonderful husband.  He always made me feel loved and appreciated.  He showed his love in so many ways: 
Graham would call me in the middle of every work day just to say a quick Hi, to let me know he was thinking of me.  

He liked me to go cycling with him, even though I was WAY slower.  When we would come to a hill and I was struggling, he would ride beside me and put his hand on my back and basically push me up the hill!   

To further entice me to go riding with him, he bought a tandem bike for us, which I thought I was helping to pedal.  But one day my feet fell off the pedals, and it made ZERO difference to our speed.  I realized then that Graham had always been pedaling for the two of us because I wasn't pedaling hard enough, and he never once complained.  When I called it to his attention, he just said, “Oh honey, it’s fine.  It’s great training for the MS 150 bikeride.”

Early in our relationship, Graham agreed to our getting a cat, even though he wasn't very fond of cats, only because I really really wanted a pet.  Thankfully it only took about a day for Graham and Cuddles to fall in love and Cuddles became Graham's cat. One of my favorite memories is of Graham lying in bed, with Cuddles kneading his chest, purring away.  

We were so enamored with Cuddles that some of her more unique sounds became our codewords. Cuddles made this startling kind of yowl whenever she was at the vet, it sounded like "Yower!" and we interpreted it as "This is unbearable. I want to go home!"  So if Graham was having a bad day at work, he would call me and just say "Yower!" and I would understand.

Losing Graham after being together so many years is sort of like being left in a foreign land where nobody speaks my language. 

It was a wonderful feeling knowing I could always count on my husband to do the right thing, whether it was giving back extra change that a clerk had inadvertently overpaid him or changing the tire for an elderly woman stuck on the side of the road.

Graham was so incredibly competent.  He housetrained our dog Micki in one weekend while I was away on a business trip.  He even trained her to ring a bell to let us know when she wanted to go outside. 

After 20 years of marriage, everything reminds me of Graham.  Name anything and I could relate it to Graham.  But here are just a few of the obvious ones:  

a beautiful garden or perfectly cross hatched lawn.  Graham was so good at creating those.

which reminds me of Graham's favorite hat of choice when gardening, the pith helmet

an organized closet or garage...Graham always had a place for everything and everything in its place

a quality photograph  (In Boston, Graham used to moonlight as a wedding and Bar Mitzvah photographer)

Scrabble ( Graham was a killer Scrabble player. )

Home Depot, Graham's favorite store

galoshes and handkerchiefs (his grandmother trained him well) 

the Kiddush (which he sang so beautifully)  

any documentary about World War II, rusty ships or bugs  (what can I say, he's a guy)

and of course, anything having to do with cycling, his passion.  It's amazing how many people he converted into bicycle enthusiasts.

Graham was such a good good person. Just being around him and observing how he treated everyone he met with respect and thoughtfulness, made me more mindful of my own behavior.  He made me a better person. He had a knack for making people feel special, and it was always a pleasure to see how his kindness made a positive difference.

He loved his family and friends so much and would do anything for us.  I know that during his life and especially during his illness, he felt all of our love and he left this world feeling very cherished, and for that I thank all of you.  







Friday, January 2, 2009

Letters to/about Graham


Here are some lovely letters that were written to Graham shortly before he died, or about Graham after he died:

[To see the rabbi's remarks about Graham, his obituary, and other letters about Graham, scroll down to previous posts.]

Here's a note from my sister, Lauren:
Graham, you are a very special man who is loved so very much. You leave your imprint where ever you go. You have a very special way of touching others and building things. By giving a warm smile, a lending hand, listening to others, just being yourself, creating beautiful things in your gardens, taking care of your many plants, building things that last, fixing things around the house and in your other homes, yes, you are quite the handy man with the green thumb. Everyone loves to see your many creations and the special way in which you treat each person you meet with love and respect. Whenever I see something that you have made or touched I will always think of you. You will never ever be forgotten. You are a special man who is loved by all who know you.

From friend, Geoff G (IL):
Graham, when I was out there in September, I was (once again) reminded why your friendship has meant so much to me over the years: you are a gentle and kind person...offering help in whatever ways you can. We have known each other for more than forty years, and I am profoundly moved that you have seen fit to keep in touch with me over the years. I am a better person for your friendship....

From friends/neighbors, Bob and Barbara J (NC):
Graham, we will remember you as a thoughtful, caring friend and a truly good person: a mensch. Please know that your life has touched ours in so many ways. Your courage and spirit in the face of the worst adversity is an inspiration to us, and surely to many others.

From co-worker, Jenae (NC):
I have a few memories that I would like to share from my time as Graham's direct report at Biogen from 1999-2002: He was one of my favorite people...He was always such an ally for me during my time in Bioassay. I think it was because he liked the way I wrote. Graham was really a stickler for good grammar...
One of my favorite moments was when we went out to golf as a team building exercise in 2000 with the Bioassay group...The green was infiltrated by geese. We were kind of stumped for a moment and tried to wait it out for awhile to give the geese time to pass through before we regained play. That is, until Graham had an idea...He leaned over to Mark and said, "I am going to bark and see if they will fly away". So Graham took a deep breath, and before we knew it, he proceeded to bark and walk toward the geese. We all stood in amazement as the geese scattered. This, by far, had to be one of the funniest moments, and one that I wished we had captured on tape....
I will never forget my practice rides with the clones [The Rolling Clones, the Biogen cycling team that Graham started] back in 2000. I really had never ridden great distances before, so I was a true amateur. I only felt comfortable on a ride if either Graham or Scott were a part of it. I remember that Graham always had such kind words of encouragement. He was part of what kept me motivated to complete the MS 150 tour. He would tell me (even on the challenging rides) that he thought that I was a really good rider and very fit for seeing it through to the end, and that he was amazed by my progress. Although I had my doubts about myself, it was really great to hear, and helped me through.
I remember that during practices, if anyone broke down on the road, he ALWAYS had the right tool to get them back on the road. We were amazed at how much one little bike pouch could hold. Oh, and of course, there was the notorious orange flag, which became Grahams signature during the rides and the tour.
During the tour, he was a true diplomat for our team, ensuring the "no rider left behind" policy, and took it upon himself to make sure that everyone was okay. It was all about the team. He had a heart for each of us, and a motivation for all of us to succeed. Graham will be missed in this world....

From co-worker, Rob M (MO):
It’s not often in life, and less so in our professional careers, that we have the privilege to know and learn from someone like Graham. His passion and genuine concern for people is one of the things that I’ve kept with me as a gold standard. I know that if I’m able to keep his spirit of concern for others in mind, I will be a better scientist, better mentor, and overall better person. Graham will continue to stay with me and if I do things well I hope to pass on a bit of that compassion to those I guide.

From sister-in-law Connie:
I keep thinking of all that Graham is. One quality that seems to stand out is his lack of mean-spiritedness. I don't think he has an unkind bone in his body. Here's my personal list of what I've been able to see in Graham:
Kind
Generous
Caring
Interested
Never give up attitude
Organized
Neat
Committed
Positive
Helper
Great Photographer
Intelligent
Unselfish
Great Smile

This might sound silly but I always have loved the fact that Graham is a slow eater. I could always count on not being the last one to finish when going out to dinner. He and I are equally slow! Yea! Also I could always count on him enjoying a glass of wine so I was able to enjoy as well.

From friend, Yaron P (CA):
We are so sorry to hear about your (and ours) loss. We will miss his charming smile and great sense of humor. I feel lucky to had the chance to get to know Graham, not only because he was a real nice guy but also because he gave me the most beautiful present one can give. He "infected" me with his passion and attitude about cycling and it became my biggest hobby (or addiction) ;-)

From co-worker, Beverly C (NC):
Graham was one of those bosses that are rare. He gave me the most encouragement of any boss I have had to date and let me know how much he appreciated my efforts.

From co-worker, Sarah K (MO):
Graham has been the only manager at his level that actually showed care and concern and appreciation of the people around him regardless of their role or level in the business. There were days when he would come over to the cubicle area that I worked in just to say good morning to everyone and see how they were. Keep in mind that this was about 5 years ago and from that time till now there is not another manager at his level that has ever done that. Graham has set a standard far above the bar for any Manager.
He is the kind of man that people want to look out for them and to stick up for them when needed. I will never forget him or his ethic at work and I will always compare any new managers in the future to his previous position here and to his demeanor. So far all have failed in comparison to his kindness, concern and love of people. It's amazing how much you can take for granted in a person until they are no longer there. He has encouraged me to be kind to others and to appreciate everyone regardless of who they are or what their job is.

THANKS:

I have so many sweet people to thank.

To my brother Elliot, thank you for hanging out with me practically 24/7 that first week after Graham died. Your presence was immeasurably comforting.

To Jaye and Karen, thank you for scouting out the hotels in Chesterfield and finding the family such a perfect place to gather.

To our wonderful family (Gary, Frada, Devonie, Jerry, Karen, Bob, Will, Paul, Elliot, Lauren, Andre) who traveled to Chesterfield for the funeral...it meant so much to me that you were all there.

To our Shaare Zedek friends in Chesterfield...thank you for all the incredible meals and the warm support you provided me and our family while we were in town. Rabbi Fasman, thank you for all the time you spent with the family the night before the funeral. You facilitated a wonderful discussion among us, full of great stories and memories about Graham. And your remarks about Graham at the funeral and shiva service did him a great honor.

To all of our friends and Graham's co-workers who came to the funeral, the shiva services and/or the open house for Graham...THANK YOU!! A special thanks to Debbi B, Geoff and Rebecca G who traveled from Illinois and Dan D from Nebraska. That was so sweet of you to come all that way to pay your respects to Graham. Thanks to everyone who brought food to the shiva services and/or made donations in Graham's memory.

Marilyn and Don in River Bend, thank you for the neighborhood get together. It was so comforting to see all of y'all.

Joni and Bernard, thanks for arranging for me to have a much needed massage at the hotel!

Genentech friends, thank you for the thoughtful and delicious basket of goodies that you sent to us while we were in Chesterfield. Everyone enjoyed the treats, especially the chocolate babke.

Ella, thank you for picking me up at the airport so late at night, and for filling my empty kitchen with all the staples. You're so thoughtful!

Biogen friends, the gorgeous plant you sent is much appreciated. Graham always loved to have such pretty plants around the house.

Nadia and Roy, thank you for the "memories" note and the basket of goodies. :-)

Joan T, thanks for the awesome meat and cheese platters for the shiva service.

Congregation Beth Jacob friends, thank you so much for your warm support and for organizing the shiva food here in Redwood City.

CAMERA friends, the shiva platter with the smoked fish spreads and deviled eggs was much appreciated. The protein among all the carbs was very welcome!! And most of all, I thank you for allowing me to take such a prolonged leave of absence from work to take care of Graham. You're the best!

Lisa and Don, thanks for taking care of Micki while I was in Missouri. That was a huge relief not to have to put her in a kennel.

Sunday, December 28, 2008

Shiva Service at House Tues, Wed, 7pm

There will be a shiva service at our house in Redwood City on Tuesday and Wednesday (Dec 30 and 31st) from 7pm to 8pm. We'll read some prayers and then invite people to share their memories/thoughts about Graham. Friends are welcome to come to one or both services.

On New Year's Day, there won't be a shiva service, but friends are welcome to visit between the hours of 1pm and 5pm.

Rabbi Fasman's Remarks About Graham

Graham's funeral was really lovely. I was so touched by all the people who came, even people who knew Graham years ago and many who traveled far to be there.

When it came time to cover Graham's coffin with the earth...my mind went on a little vacation. I just kept thinking, "That coffin looks way too short for Graham. I don't think he's really in there." I think until I get back to our home in California and find that he's not there waiting for me, Graham's death won't be real to me.

Rabbi Fasman's remarks about Graham really captured his essence. First he read excerpts (I'll share those with you soon) from many letters that people had written to me about Graham. And then he delivered his own remarks (see below):

About Graham (David ben Ze'ev ha-Levi):

Such a young man. Such a remarkable man. Such a profound loss.

Graham Green lived only 51 years. Though it was far too short, this was a man who touched this world in countless kind and positive ways. Today is the fifth day of Chanukkah - in fact, Graham passed away on the first day of Chanukkah. The hymn most associated with this holiday is Maoz Tzur - Rock of Ages. The more I learned about Graham, the more I realized that he was a rock himself - strong, constant, and consistent.

Graham was born the second of two sons to Walter and J Green. When he was about five years old, his parents divorced. At that time, his grandmother, Esther Green, moved in and became a guiding motherly presence in his life until the time he went to college.

It wasn't a large family, but it was close. There was his brother Gary, eight years his senior. Additionally, Graham's immediate family included his uncle Jerry and aunt Marie, and their children Karen and Paul. As the years passed, the family grew. Karen married Bob and Paul married Avivah. Karen and Bob's son Will is just a few works before Bar Mitzvah, and Paul and Avivah have a 3 1/2 year old, Jonah. There is one other very important family member in Graham's life - his stepmother Frada, who came into his life when he was about 20 and with whom he was close for these past 30 years. Sadly, Graham lost his father Walter four years ago, and just last month, his mother passed away.

Though Graham and Lee never had children, they did host a series of international students in their home for many years. Graham was able to be a father figure to many of them and kept in touch with many of his surrogate children over the years.

As a child, Graham was mature well beyond his years. He was intelligent, with a sweet and gentle demeanor. Gary reports that his little brother was cute and easy - Graham wasn't a cranky kid. Even as a child, Graham treated others well...this was one of his outstanding traits throughout his life.

And Graham was both a child and a man who persevered. He faced challenges with equanimity and patiently continued to move forward until he had achieved his goal. After transferring from another school, he graduated from the University of Illinois with a double major in biochemistry and microbiology.

Graduate school was also a challenge. Graham encountered a number of dead ends while pursuing his doctorate. When he had finally hit upon a promising thesis topic and had nearly completed all the work necessary for his Ph.D., someone else finished the same project first, so Graham patiently began a new project. He did finally receive his Ph.D. in Biochemistry from Rutgers University.

Graham's patience paid off in another important way during his graduate school years. In August of 1986, through the Boston Jewish Young Adult Center, Graham met Lee at a group outing to Canobie Lake Amusement Park. The first thing they did together was to go on the roller coaster ride. He found her screams endearing. That was another of Graham's core traits: he could observe all manner of human behavior with curiosity, but without being judgmental.

Graham and Lee dated for about a year. He was very gentlemanly in his courtship. He was a graduate student, so he had very little disposable income for fancy dates. Instead, their dates were creative...kite flying, canoeing, picnics, museums, and then there was the lasagna dinner he made for her in his toaster oven.

Apparently Graham and Lee broke up at one point, or maybe it was just Lee. But Graham knew what he wanted, so he responded with another of his core traits: he was infinitely patient, persevering and persistent. Lee was enrolled in an Adult Bnai Mitzvah class. Although Graham had grown up with an educated Jewish father, and though he had been Bar Mitzvah at the age of 13, he enrolled in the same class. Just to be with her.

His perseverence of course eventually paid off. Lee and Graham were married in October of 1988. They shared 20 wonderful years together. Was he a good husband? Without hesitation, Lee says he was the best. And she admits that she was not alway an easy one to live with. Graham never took offense. He made her a better person.

These past three years that Graham fought his cancer, and especially since April when his cancer turned aggressive, Lee was unwavering in her support and care for him. Karen, Paul and Gary all agree that no one ever took care of anybody as well as Lee took care of Graham.

Graham's career began at Organogenesis in Cambridge, where they were working to create replacement skin for burn victims using, in part, baby foreskins. From there he worked at OsteoArthritis Sciences, Wyeth and Centocor. Graham's final position was at Genentech, as Associate Director of Quality Control, directing the Stability lab, a critically important and detailed function within any biotech firm.

As a manager, one of his finest character traits created close and respectful relationships with those he supervised. Graham always treated others the way he would want to be treated himself. Another of his core traits: he lived his life in accord with the highest Jewish values. In the words of the First Century BCE sage Hillel, "What is hateful to you, do not do to your fellow man." Graham treated everyone this way: waitresses, nurses aides, and everyone with whom he interacted.

Outside of work, Graham had several passions: he loved bike riding, photography, home repair, and gardening.

Those who know him know how much Graham loved to ride his bicycle. He rode across the states of Utah and Iowa. He loved the challenge of cycling, preferring to ride uphill than on flat ground. Cycling cleared his head - these past years he cycled to and from work 3 days a week. In California, that meant twenty-two miles each way. By the time he got home in the evening, he had left the problems and challenges of work behind him. Cycling was also important to him because Graham liked to keep in shape.

And Graham was also a fixer. As a twelve-year-old, he took apart his Uncle Jerry's bicycles, cleaned every part and then reassembled the bikes, with no parts left over. It took hours, but Graham was quietly persistent and did not complain when things got tough.

Graham loved to fix things. He loved to go to house to house among family and friends in order to fix all kinds of things for them. In fact, Graham and Lee once found a perfect house to buy, but Graham didn't want to buy it because there was nothing in it that needed fixing. The passion to fix things reflects yet another core trait: living by the Jewish value of tikkun 0lam, repairing the world. Graham loved to leave things better than he found them. He did this with things and with institutions and with people.

Graham loved photography. Early in his professional life, he created a photography business on the side, mostly doing weddings and Bar Mitzvahs. He loved to capture beauty. And he found human behavior to be endlessly fascinating, often puzzling. He was an observer of people and he enjoyed capturing their images.

Graham also loved to produce beauty - in his garden. He loved to design his landscaping and to create and maintain his yard. Not only was he a keen observer; he also had remarkable vision; he could see what the garden would look like when the landscaping project was finished. And he was right.

From the time of his childhood, Graham had a relatively close circle of friends. And he kept up with them no matter where life took them. He was still in touch with one of his elementary school friends, Geoff. Graham would call them regularly, often when he would be driving to work.

Religiously, Graham was committed to his Judaism. He took Judaism seriously, both for its ethical teachings and also for its rituals and practices. He enjoyed coming to services on a regular basis and was a frequent member of our daily minyan at Shaare Zedek, especially in his year of mourning for his father.

In that context, I remember Graham as quiet, serious, and at the same time, gentle and friendly. We had a number of very good conversations, often over breakfast following minyan. Graham and Lee also were part of the Shaare Zedek Mission to Israel in 2005. He was committed to Israel and supportive of Lee's work with CAMERA. Graham had travelled to Israel following his high school graduation as part of a Young Judea program.

In Pirke Avot [Chapter 4, Mishnah 1], the second-century sage Ben Zoma asks a series of questions about understanding the primary virtues of a Jewish life. Eizeh hu chakham? Ha-lomeid mi-kol adam - "Who is wise? One who learns from every human being." Eizeh hu gibor? Ha-koveish et yitzro - "Who is mighty? One who can control his own inclinations [evil impulse]." Eizeh hu ashir? Ha-sameach b'chelko - "Who is rich? Those who are content with their portion." Eizeh hu mekhubad? Ha-mekhabeid et ha-beriot - "Who is honored? Those who honor all people."

Graham was a wise man, learning from others. He was quiet and engaged with those with whom he spoke. Though he was very intelligent and highly educated, Graham felt that he could learn something from everyone, either by how they behaved or what they said.

Graham was a mighty man - he was in control of himself to a degree that far exceeds that of most people. He was quiet, he was patient, he was even-tempered, he was forgiving, he had perseverance and he did not give up when he hit dead ends and tough spots.

Graham was a wealthy man - he was grateful for all that he had and he was also profoundly satisfied to have such a wonderful wife, family, friends, and career.

Graham was a man who was honored by others. He honored everyone with whom he came in contact, no matter what their station in life, no matter their relationship to him. He treated others how he wished to be treated himself.

Many people are defined by their life story. Graham was defined by his character, a character established when he was still a child and remaining constant for the remainder of his life. This was a profoundly good man - kind, thoughtful, and caring; persistent, hardworking, steady, reliable, self-reliant. He was considerate, supportive, altruistic, connected to family and friends. He was gorgeous, both on the outside and on the inside. He was committed to enduring values as expressed in Jewish principles and ritual, while at the same time oblivious to fads and pop culture. There was a timeless quality to Graham. He was intelligent, curious, and non-condescending.

Jewish tradition speaks of 36 righteous individuals that walk the earth at any given time. We don't know them; they don't know that they are one of this distinguished group. They are called Lamed Vavniks, from the Hebrew letters Lamed and Vav that numerically represent the number 36 (which is 18 x 2, or twice chai, life).

If he wasn't one of these Lamed Vavniks, he certainly was a candidate...and maybe even a finalist. The world is diminished with his passing.

May Graham Green rest in peace.

Zichrono livracha - may his memory be for a blessing in the lives of all who knew him and loved him.

[I'll include some of the letters he read from soon. Forsan's is below.]

A Tribute to Graham from Forsan

This beautiful message is from Forsan H, our "honorary son". Through the International Friends program at Brandeis, Graham and I were Forsan's host parents when he was a student at Brandeis, and we've remained close with him ever since.

Forsan wrote this to be read during the funeral. He was in Jerusalem, but "attended" the funeral by listening in to cousin Paul's open cellphone.
*******************************************

In my 12 years of living in America and having Graham in my life as a father and a friend, I have never met anyone so thoughtful and considerate as he was, so kind and calm, so genuine and sweet, and so optimistic—always seeing the glass half full. “Dr. Green” as I so often have endearingly called him, was a man who takes everything that life throws at him with a sense of perspective and a smile on top, a smile that brightens his entire face and calms those around him. He was a man with an exceptional ability to thrive on life’s challenges, physical or emotional, and to keep pushing further and further; a man who finds beauty, meaning, and happiness in the simple things in life: in biking, in gardening, in bird watching, in photography, and even in eating a simple meal. But above all, he was a man with the greatest sense of commitment and dedication to things he loves: to his sweetheart Lee, to his brother Gary, to his family and friends, to his work, and to his breakfast cereal—a relationship that dates back even older than his marriage! [ note from Lee: He was very loyal to Quaker Oats Low Fat Granola, because it was made in his hometown of Danville, IL ]

Graham’s life has been about leaving our world a better place than before. It was exactly two months ago on this day that I accompanied Graham to the Stanford Medical Hospital for a regular radiation appointment. That day, the doctor was late, and Graham was weak and weary. In our wait, we talked about life and its meaning. I asked him: “how do you deal with all that you are going through?” His response will ring vividly in my mind until the day I die. He said: “Throughout my life I have tried to be a part of something bigger than me that will help me make a meaningful contribution to this world…these days are no different. I wake up every morning and make it my mission to ‘contribute’ in my own way—either by making Lee smile, or by filling the bird feeder, or by fixing little things around the house.” What a way to live a life—Graham’s selfless nature and generosity of spirit are uplifting and in celebrating his life I take it upon myself to continue his mission and live my life by this very principle.

I feel privileged to have spent many days, but clearly not enough, with Graham and Lee in their home recently. This time, Graham’s always meticulously groomed beard was gone only to uncover a beautiful baby face, and a rock-solid fighter’s spirit. His battle against cancer was fought with so much patience, resilience, humility and grace. And in the midst of such a fierce fight, when most of us would be resentful and bitter, Graham continued to smile. And just as much as I will miss his smile, I will miss his strikingly beautiful deep voice—one of God’s many gifts to Graham! I already miss you “Dr. Green” and love you very much.

I am in Jerusalem at the moment listening to all of you celebrate Graham’s life and I only wish I could be there with you Lee. But as you leave the service, I will honor your husband’s life with a prayer and a visit to the holy sites of this city that Graham loves so much. I know he will be watching me from above, with a smile.

Thursday, December 25, 2008

Graham's Obituary

The past few days have been a blur. I had to fly to St. Louis Tuesday morning so that I could pick out Graham's burial plot Wednesday morning. I was up all night Monday unpacking all the stuff we had had in the Manor Care room, and then doing laundry and packing for the St. Louis trip. I was so very very tired, but I didn't have time to sleep.

Around 4am, as I was trying to find some winter shoes to pack, I had to lie down on the closet floor to look underneath the clothes for the "hardly ever wear, should throw away but can't" shoes tucked way in back. Well, it felt soooo good to lie down, like one of the greatest pleasures ever...and suddenly... zzzzzzzzzzzzz. I was asleep. Tick, tock, tick, tock...cab coming, need to be packed...zzzzzzzzzzz...

Ring, ring! The telephone woke me up. Thankfully my neighbor Ella saw that my lights were on and had just gotten the email message from me about Graham's death, so she called to ask if she could come over and give me a hug. If I had stayed asleep, I would have surely missed my plane. Thank you, Ella, for waking me up!! And the hug was much needed too.

Flew to St. Louis via Los Angeles. You could tell which people were going back home to LA, and which were just passing on to somewhere else. The LA people were all so well groomed. So blond. So buff. So botoxed. The rest of us looked, uh, comfortable.

Then I connected with a flight to St. Louis. The first two hours of the three hour flight were fine, but the third hour....time seemed to stand still.

When I got off the plane, I had a call waiting for me from the funeral director, telling me that he needed to send in Graham's obituary first thing in the morning. You'd think I would have had Graham's obituary written a long time ago. Well, you'd be wrong. Strangely, Graham's death surprised me. I always felt like I had more time to write the obituary. Plus, I didn't feel up to the task. It's a big responsibility trying to capture someone's essence in a short obit. I wanted to get input from Graham's brother and cousins, but there never seemed to be a right time.

As soon as I arrived at the Chesterfield hotel, I went straight to my brother's room (he had arrived that afternoon), and started writing. I figured if I went to my room, I'd just fall asleep.
Below is what eventually was written. Forgive me if I didn't do Graham justice.

Here's the link to Graham's obituary. It's on an interesting website called legacy.com
It allows you to sign a guest book, add comments, upload photos. So, please feel free to participate in that way!

Here's the link to the obituary:
http://www.legacy.com/Link.asp?I=LS000121818956X

Tuesday, December 23, 2008

Graham Not Alone; Our Fave Charities

I never liked for Graham to be alone while he was going through his various treatments and hospital stays. Even now, I abhor the thought of his body being left all alone at the funeral home. So I'm very glad that there's a Jewish tradition of hiring a "shomer," a guard/watchman, to sit with the body until it is buried.

People have been asking where they can make a donation in Graham's memory. Here are some of our favorite charities:

Leukemia/Lymphoma Society http://www.leukemia-lymphoma.org/
CAMERA (Committee for Accuracy in Middle East Reporting in America) http://www.camera.org/ 617-789-3672
Hadassah (earmark for Young Judaea Camps) http://www.hadassah.org/
Pets in Need http://www.petsinneed.org/

Monday, December 22, 2008

Graham Died Today; Funeral Details

My sweet sweet husband died today around 3pm. He had a very peaceful day, pain-free, and he was surrounded by family stroking him. We had read some psalms to him a few minutes before.
I whispered in his ear how much I loved him. And about a minute afterward I noticed that he had stopped breathing.

I feel so lucky that I had 20 years with the nicest guy in the world.

Eventually I will be moving back to Missouri, so I want to bury Graham in a cemetery near our house there. Before he was even sick he told me about a beautiful cemetery that he often passed on his bikerides around the area. So I thought it would be fitting to bury him there, in a place that he associated with the bikerides he loved so much.

I'll be flying out to St. Louis (wish me luck getting a reservation!) and the funeral will be on Friday morning, at 11am. We'll have a graveside service conducted by Rabbi Fasman, who Graham admired as a wonderful teacher and role model for kindness.

When I get back to CA, there will be shiva services (a brief service with prayers/readings) at our house to which y'all (family, friends, neighbors, work pals) are invited. At the end, we'll open it up for anyone who wants to share a story or their feelings about Graham. Stay tuned for details, but my guess is that it would be from 7pm - 8pm.

I'm dreading going home to my empty house.

Thanks again for making "Graham's Adventures in Cancerland" a journey filled with love and sweetness.

Sunday, December 21, 2008

Scary Day; the Power of Touch

Graham's body was saying "Enough already!" over a month ago. Food had become repulsive to him, but he forced himself to eat. Now that he isn't fully conscious, his strong will is no longer in control, and his body has taken over. Since Saturday, when we put any food or water up to his mouth, he clamps it shut or waves us away.

On Saturday, there were still moments when Graham spoke to us. And when we talked to him, he would smile and you could see he was comprehending what was being said to him. But today, Sunday, he's been in a different state. He opens his eyes every once in a while, but he doesn't appear to really see.

He also woke up today with heavy chest congestion, which became very scary several times during the day. Lots of horrible gurgling that totally freaked me out. The medical staff said there was nothing to be done about it. Amazingly, he's able to sleep right through the gurgling.
Also his pulse is very fast, around 137.

In the morning, he started to make little moaning sounds, which broke my heart to think that he was in pain even when he was sleeping. We totally loaded him up on pain medication and the little moans didn't stop. But then I found that when I kissed him or stroked his back, they often stopped. When he had his massage, they stopped for the whole ENTIRE hour, and never started back up!! Such a relief for all involved.

We had visitors today who were very comforting to me, but alas, I don't think Graham knew they were there.

It was the first night of Hanukkah tonight and I "lit" the electric menorah since they don't allow candles here. The Hanukkah story [of the one day supply of oil for the eternal light (representing God's eternal love) in the Temple miraculously lasting eight days until more oil could be pressed] brings to mind how much longer Graham has remained with us than was expected by the doctors. It wasn't the cure we were hoping for, but the extra time has been precious.

In a Quandary about Visitors

Many of our friends have asked if they can come visit Graham to say goodbye. I never know what to say! I'm betwixt and between. Graham isn't really "himself" these days due to all the morphine, and due to the cancer in the brain. Not to mention being really really tired. I don't know if the "real" Graham we all know and love would appreciate his friends seeing the "Graham on drugs." I want to protect his dignity.

At the same time, "Graham on drugs" enjoys having visitors and I hate to deprive him of that pleasure. Also, hey, the dying process is a part of life and we are all going to go through it. Many of you have already experienced it with other loved ones. So I'm sure our nice friends would not think less of Graham for simply being human.

We had such a wonderful visit with Joan T and her husband yesterday. So, I'm back to leaning toward saying yes to non-family visitors for short (5-10 minutes) visits.

Joan and her hubby were the perfect visitors. They were cheerful yet caring. They didn't expect Graham to have a normal conversation with them, but they knew that he was still listening (in the hazy way that someone does when he's half asleep). Joan told Graham what he meant to her, why she enjoyed working with him, the qualities about him that she admired...They cheered us up, touched our hearts, but also knew to keep the visit brief, because it is hard for Graham to stay awake.

I'm doing my best to surround Graham in a cheerful but serene atmosphere. While it's natural to tear up when contemplating Graham leaving us, I strive to not outright cry in front of him. I just can't imagine that having people crying around him or being all somber and sad could be at all soothing.

Please know that email and snailmail goodbyes are also WONDERFUL. On Friday, Graham had an unusually clear day and I spent much of the day reading to him all the fabulous notes that people sent to him. He loved them. That was a day with a lot of fond smiles.

If you want to visit, just give us a call .

There are some times when it's just not a good time to visit, like when he's getting one of his fabulous massages. Or if someone else is visiting. Or if Graham is just not feeling up to it. So please call right before you want to come to see if it's a good time.

The hospice folks gave me a book about what to expect in his last days, and it says that often in the last week or few days, the dying person often doesn't want to have visitors, even family and close friends! So please don't be offended if Graham suddenly decides he doesn't want to see you. It's just the natural process of turning away from this world to the next one.

Saturday, December 20, 2008

Graham the Charmer

Graham is so sweet. He's loaded up with morphine and dilaudid, in and out of sleep all day. When he does talk, it mostly isn't very clear. You can tell he has something to say, but the words just don't come out right. But what came out crystal clear when two nurses aides walked into the room this morning? "And what can I do for you two lovely ladies today?" His charm and sweet nature are apparently hard-wired into him!

Thursday, December 18, 2008

Graham Out of Ammo in his Cancer Fight

Dear Family and Friends,

Graham has put up a very tenacious fight against his crazy aggressive cancer, but, I'm sorry to say, we're officially out of ammunition now. Yesterday's PET-scan showed that the cancer has once again spread into his brain, and has advanced much further throughout his body. More chemo or radiation would have no benefit and might actually hasten his death. So we're focusing now on pain management and making him as comfortable and mellow as possible: massages, soothing music, bird watching, reading him the wonderful emails and cards so many of you continue to send... The doctor thinks Graham has a month or so left with us, probably less.

Graham is sleeping quite a bit now, so it's tough to reach him by phone. But if you want to send him an email or card, I will be sure to read it to him. Hearing from y'all always brings a smile to his face.

Thanks to all of you who have helped Graham through this challenging time, surrounding him with such love and appreciation, making him feel cherished with your visits, calls, cards, emails and care packages.

We wish you a happy Hanukkah or Christmas and a new year filled with health, love, purpose and joy.

Perfect Hanukkah Menorah for Graham, the avid cyclist!
I even got to tell the artist what color to make the shorts, shirt and wheels.

Love,
Lee

P.S. A couple of people have asked how to see the older posts that have seemingly disappeared from the blog lineup. Just click on "Older Posts" at the bottom right of the last blog post. Or, click on the archives in the righthand menu. There, you can read them month by month, from April through today.

Monday, December 15, 2008

Say What?

The nurses and nursing assistants (CNAs) here are so sweet. One of the CNAs who particularly dotes on Graham came up to me at the end of her shift to say that she would have two days off. And then she said, "If something happens to your husband while I'm gone, I just wanted to let you know how much I enjoyed knowing him. He's such a good man. Please give him a kiss for me. "

Well of course on the one hand, I was very touched. I hugged her and thanked her. But ON THE OTHER HAND, say what? She thinks Graham might die in the next two days??? The staff here do see a lot of death, and likely know what signs to look for, so needless to say, I was very spooked.

Since Graham has been going through so much this past week, I've asked both the Manor Care doctor and our usual oncologist if Graham might be close to the end. The Manor Care doctor was more pessimistic. She felt that the swelling (lymphedema, ascites), lack of appetite, and the beginning of some wheezing did indicate that he's approaching the end. BUT, since he's forcing himself to eat, she said that he is staving off death, and that death wasn't expected immediately. But if he stopped eating, he would likely go into kidney failure within a few days and die a painless death. She said that the lack of appetite was the body's way of bringing on a pain-free death, because kidney failure releases some chemical or something that acts as a natural pain-killer. The patient gets very sleepy, until he eventually is sleeping all day, and just gently and gradually passes away.

Our regular oncologist was more blase, said the test results were not that alarming, that Graham has actually been worse before, and that she's still expecting him to come to Stanford on Wednesday for his PET-CT scan, doctor's appointment and chemo. Phew! I'll take that opinion, thank you.

Graham woke up today with a high fever of 102.6, felt pretty bad, and asked for pain meds. We gave him a heavier dose than usual, along with regular doses of Tylenol, and he slept almost the whole day. His fever is down to 100.6. He woke up around dinnertime, ate a pretty good amount, and then went right back to sleep. He's snoozing away as I type.

The blood and urine tests done recently didn't indicate any infections, so the fever is likely "tumor fever," which happens when someone has a heavy tumor burden. Graham has had tumor fever off and on before. It waxes and wanes, based on how effective a particular treatment was. But, since the cancer has always come back, the tumors regrow, and then the fevers and chills return.

Is it really only 10 days to Christmas and 6 days until Hanukkah?? Where did Autumn go to?

Sunday, December 14, 2008

Nothing Can Be Done for Swelling

We got the test results back around midnight, so we didn't need to go to the ER. The good news is that his kidneys and bladder are fine. The bad news is that the swelling and pain are cancer-related and can't be helped by taking diuretics or doing any kind of procedure. What I think the doctor said is that the lymph fluid is backing up because the lymph system is so clogged with tumors, so that surrounding tissue gets somewhat flooded/swollen. And unfortunately, there's no way to drain the fluid, since it's system-wide.

I was really hoping that it was something else, so that we could take some action and stop Graham's pain. Unfortunately, it means that this will be an ongoing problem that can only be dealt with through pain medications. I feel so bad for Graham that he has to go through this. He so doesn't deserve it!

AHHHH, MASSAGE:

Graham had a wonderful massage today from the massage therapist he had previously used at Stanford Hospital. It's tough on the muscles to be in bed so much, so a deep massage really helps.

Ahhhh, we love massages. I sometimes go for a haircut when I don't quite need one yet, just because the hair stylist gives a heavenly head massage during the shampoo.

It's great when you can just close your eyes and totally relax. And you can do that when you don't have to stare at the person giving you a massage. Which is what makes those hand and arm massages that some manicurists like to give so freaky weird. You're like two feet from them, face to face, while they're massaging your arm. Where do you look? What do you say? Ugh. So awkward!

Saturday, December 13, 2008

Should I Stay or Should I Go Now....to the ER?

Graham's been having a rough few days. Lots of belly pain, lots of bloating. Not sure if it's related to the bladder, intestines, spleen, kidneys, or a build up of fluid in the tissues just because of the spread of the cancer. Every day for the past 3 days, there's been an attempt to get some tests done to figure it out, but due to errors by the doctor and the technician, the tests either didn't get done, or were done incorrectly. Arrrghhh. The doctor and technician both seem very caring and nice, but, what are ya gonna do, people make mistakes. ( I could write a very long HORRIFYING book on this topic, particularly about nurses and catheters.)

After telling the Manor Care doctor we were ready to go to the ER to finally get some answers, she decided to get the tests done STAT (the squeaky wheel does indeed get the oil). Hopefully we'll have some answers in a few hours. If not, particularly since Graham now has a fever of 101.2, we'll scedaddle to the ER.

In the meantime, Graham has been on dilaudid (not sure if that's spelled right), a really good pain drug that works quickly, just about around the clock. It relieves the pain, but it basically means he sleeps most of the day.

BIRDS!!

Something that Graham has really been enjoying is bird watching. I got some bird feeders especially designed to attract finches, and yeah baby, they really work. They're sort of like netted socks filled with I don't know what, but 10 minutes after I hung them on the tree by our window, dozens of finches were swarming around them. For hours every day, we have constant activity, usually about 16 birds at a time.

It's interesting watching their behavior. Most of the birds will patiently wait their turn, giving the birds who are currently feeding some space, But then, inevitably, a couple of snotty birds will break in line, and this starts a whole chain reaction of rudeness among the birds. It's sad that the "good" birds don't chastise the rude birds, but instead just become more rude themselves.

THANKS: Thank you Ellen H for always being there for us. I really appreciate you hanging out with Graham yesterday and today so I could go visit Micki and get some errands done. Graham enjoys your company. And thanks for lending us the nice lamp for our room. You truly did brighten our day in more ways than one!

Gary, you're such a wonderful brother and brother-in-law. Whether it's spending evenings with us, bringing a smile to Graham's face with silly jokes or PEZ dispensers, or bringing a great mattress for me to sleep on, you always think of ways to help us out.

Alice S, thanks for continuing to take care of Micki! It's such a relief knowing Micki is happy and loved.

Joan T, you are some kind of mind-reader. A couple of days ago, I was taking Graham out for a "stroll" in his wheelchair, and the poor guy was freezing even though he had two blankets around him. I made a note to myself to go buy two warmer and snugglier blankets. And then I went to the house today to water plants and check the mail, and what awaited me, but a wonderful gift box from Genentech, with two gorgeous soft warm throw blankets from Joan (and some other lovely and fun gifts, such as a squeaky toy for Micki). How perfect!! And thanks for sending the hilarious You Tube: Beware of the Doghouse. It reminded Graham and me of our first Hanukkah gift exchange with each other. (To watch the short video, go to the "Interesting Stuff" section to the right. Enjoy!)

Ruska, you know me so well. There are fewer things I enjoy more than unusual teapots and exotic teas. How fun to get a whole collection of flowering teas to experience with a pretty new teapot. Graham loved the message in your card.

Thanks River Bend (Missouri) neighbors Lynn, Jaye, Don, Marilyn and Ron for your lovely cards this week. And thanks Diane, Steve and Carol for staying in touch. We miss y'all!

Wednesday, December 10, 2008

Out of the Hospital!!! Screamers & Clueless Clerks

OMG, that was a long stay at Stanford. A whole week! But this evening, Graham finally got sprung. The neupogen shots reversed the neutropenia and the Cipro and other antibiotics have mostly got the infections under control. Just as he was leaving the hospital, he got chills, but at that moment he didn't have a fever, so they let him go. Back at Manor Care they checked his temp and he's up to 101. They've got the IV antibiotics going, which is what Stanford would have done, so I think it's fine if he stays out of the hospital.

We had a "screamer" in the room next to us, a patient who was so out of it, that every few hours, she would launch a startlingly loud tirade against the nurses trying to help her. We feel compassion for her, but nonetheless, it's GREAT to have some miles between us!

Because Graham isn't totally over the infections yet, Dr. A. has postponed chemo for at least a week.

He didn't get much physical therapy in the hospital, so he may have to just about start over with that here.

Did I tell y'all about my experience with applying for long term disability from the Social Security Administration for Graham? Oy. I went for the interview and the clerk never asked what his prognosis was or how the cancer affects his ability to work. All she asked were irrelevant questions like "how long does he stand each day at work?", or "how do the medications he is taking affect his ability to work?" I waited patiently for a question that would get to the heart of his disability, like "why can't he work?" (cancer in the brain diminishing his ability to think clearly...needing to sleep 16 hours a day...), but nope, it never came. I told myself to be patient and just provide the vital info at the end, but I'm embarrassed to say that I was so tired by the end of all the inane questions, that I had sort of gone into a daze and completely forgot to say, "Excuse me, but you never asked about the CANCER!!!!" Luckily I needed to provide them with one more document the following day, which allowed me to insert a short note with the vital info. We'll see what happens. If they actually read the medical documentation they requested, it will be obvious to them. But the person helping me didn't seem remotely interested in it. I'm not even sure she understood that non-Hodgkins lymphoma is cancer. And she also got really annoyed when she heard how high Graham's salary was, as if it offended her in some way. What's up with that??

THANKS: Thanks Kayla S (daughter of Joni and Bernard from FL) for the beautiful artwork you made for Graham. Graham put it up on the wall right beside his bed so he can see it every day.

We've gotten a number of wonderful cards and notes from Genentech folks. Your thoughtfulness is much appreciated!

Monday, December 8, 2008

Double Whammy: Neutropenia & Fever

As Gilda Radner used to say, "It's always something." Today Graham got hit with a double whammy. He's gone into neutropenia (white blood cells took a dive and he's really susceptible to infection) and his fever came back. They transferred him to a private room. So I wonder if they'll let him out of the hospital tomorrow.

The course of Graham's disease has tended to go in plunges and plateaus. He's stable for a while, then something happens and some aspect of his health goes way downhill, but then we get used to the "new normal," go merrily on our way for a while, until the next plunge.

I'm sort of thinking a new plunge might be around the corner, but I hope I'm wrong.

We had a delightful visit with Rabbi Ezray today. What a sweetheart of a man. He exudes warmth and caring. He's had some pretty tough challenges thrown his way over the years, and like Graham, he also handles them with grace and kindness.

He's leaving shortly with 60 people from our congregation on a 3 week trip to Israel. We had originally planned to be part of the group, before Graham's cancer turned aggressive.

There are so many social, political, volunteer, religious and cultural events and activities that we would normally have enthusiastically done over the months, except for Graham's health crisis, and frankly, it's amazing how little we've missed them. Our calendar from the beginning of the year had something, usually several somethings, on almost every day of the month. Then, around April, we started only going to special events. From mid-June onward, the calendar is almost only filled with doctor's appointments.

It's far easier to "drop out" than I ever imagined. And I'm really good at saying "no" now. I used to have terrible guilt trips whenever I felt compelled to turn down a speaking gig or a volunteer opportunity, but now, not a problem! We do miss hanging out with our friends though.

And the Israel trip. Alas. Both Graham and I really regret not being able to go. For such a tiny country, there's always something new and wonderful and magical to see. And it's always a different experience depending on who you go with. It would have been so amazing to go with the sweet people from our synagogue. We're looking forward to a visit from Rabbi Ezray upon his return to hear about their adventures.

Sunday, December 7, 2008

Fever Finally Breaks

Graham, still smiling, with cousin Karen and brother Gary.
Aunt Marie and cousin Karen


Wow, the staph infection Graham had surely did hang on for dear life. Graham had a fever and was extremely lethargic from Wednesday through this morning (Sunday). He's feeling so much better and more energetic now! Hopefully we'll get to leave the hospital Tuesday.

We had a lovely visit with Graham's cousin Karen and aunt Marie from Bethesda, as well as brother Gary. They always bring cheer and warmth.

Marie really touched my heart when she told me I would be family forever with them.

Thursday, December 4, 2008

Good Timing; Gross Me Out

GOOD TIMING:

We came to Stanford on Wednesday for radiation and chemo, and a day later, we're still here!

Tuesday night Graham had a very slight fever, the first one in a long time. Wednesday morning, we arrived at Stanford at 8:30am, and his fever started to increase. Along with doing the last radiation treatment and a chemo treatment, they checked for an infection, and sure enough, he's got one. They gave him some IV antibiotic and were all set to send him back to Manor Care, but then Graham's fever went sky high, he started getting rigors (big time chills and shaking), and his pulse stayed in the 140's. So they admitted him to the hospital and have given him all kinds of good vitamins, minerals, liquids, and medications to help him feel much better. He'll likely leave the hospital Friday afternoon.

His timing was so excellent that he was at Stanford when everything got scary. Manor Care has nurses and an on-call doctor, but it was much better to be at Stanford with a bunch of doctors and an extensive pharmacy when his body went haywire.

GROSS ME OUT:

Apparently someone at Stanford Hospital has a pet donkey or pony that they sneaked into the hospital. And I guess they didn't feel like taking it outside to go potty, because when I went to use the public restroom last night, I found that some barnyard animal had sprayed urine all over the toilet and bathroom, and didn't even bother to flush what little actually made it into the toilet.

No, you say? Well okay, maybe it wasn't a barnyard animal. But I prefer to think it was a hapless beast, or maybe some lost child raised by wolves, than a TOTALLY SELFISH DISGUSTING HUMAN BEING WHO INTENTIONALLY LEFT SUCH A MESS.

I actually got a little insight into this strange creepy repulsive behavior from an old housemate of mine back in the 80's. She seemed like such a swell, refined, thoughtful person. But then I got to know her.

Turns out her nutty mother taught her that public toilet seats were NEVER to be touched by any part of her body, and that she should STAND OVER the seat to do her business, and then flush using her shoe.

So her pure behind stays pristine, while she has taken a perfectly clean toilet and bathroom and turned it into a filthy nightmare for all who follow her.

Grrrrrrr.

Tuesday, December 2, 2008

Operation Bird Feeder



I did something sneaky, but I feel pretty good about it. There was a nice bird feeder by Graham's window in his first room here at Manor Care. But no birds ever visited, because it was placed too close to the window, which spooked the birds.

So after Graham moved to his private room last Wednesday, I got up super early Thursday, before anyone was up, and moved the bird feeder in front of the window of his new room. I placed it far enough away from us for the birds' comfort, but close enough for Graham to be able to see them well. Then I filled it with sunflower birdseed, which they seem to love. Apparently there is an art to properly pouring seed in, because on my first try it all went in the feeder and then immediately straight out of the holes and onto the ground! Arrghhh. I eventually got the hang of it, though, and the bird feeder is quite the happening place now. We've seen all kinds of gorgeous birds and Graham really enjoys watching them.

If the bird feeder had been working in the old location, I would have just bought a new one for the new room. But hey, no sense wasting an unused one!

Graham has his last radiation appointment tomorrow. Yay!!!!!!!!!!!!!

And, the other good news is that he can finally get more chemo now, to hopefully slow down some of the new cancer growth elsewhere in the body. He'll be getting that tomorrow too.

For his comfort, Graham has been going to his Stanford appointments by ambulance (paid for by the ever generous Aetna), which is quite an interesting experience. The ambulance drivers (paramedics, EMTs?) are so fabulous. They have all been hilarious, cheerful, caring, competent, strong and commanding. One feels totally safe (and entertained) with them. I think a lot of them are ex-military guys and gals. They're very intense and focused.

We're looking forward to a visit from Graham's cousin Karen and Aunt Marie from Bethesda Friday through Sunday.

THANKS for all the lovely cards and emails. They brighten our day (and the walls of the room).

Leegreenmo@aol.com

Saturday, November 29, 2008

Boot Camp; Thanksgiving Mystery Meat

Manor Care is sort of like boot camp for the both of us. We wake up at the crack of dawn and do a lot of physical work throughout the day. We go to bed early, totally exhausted.

Graham is doing upper body exercises to strengthen his arm power and to train new trunk muscles to help him keep his balance. Just sitting in a chair is exhausting for him because it's using different muscles. Right now he's up to 90 minutes at a time before his back muscles start to completely rebel. He also does leg exercises with whatever muscles will still obey.

I'm being trained to take his legs through their whole range of motion to keep his muscles from tightening. This involves a lot of leg lifting and rotating. It's enjoyable for me to have an excuse to grab and fondle Graham's gorgeous legs, but it is a workout, because legs are pretty darn heavy. It's probably the most painful exercise for Graham unfortunately, because his muscles just love to be tight.

Thanksgiving...
We enjoyed a visit from John, Erika and their dog Shiloh. We took our first walk around the neighborhood and learned how to navigate sidewalks with the wheelchair.

After they left, I went to bring our dog Micki for a visit. She was so happy to see Graham! But he at first didn't want to let her up on the bed, so she just kept pacing and exploring the room, not settling down. Finally Graham let her join him in bed and she sighed with contentment and went to sleep snuggling in between his ankles, with her head on his leg.

Graham was given a very nice turkey lunch, which I thought was turkey overkill, since turkey dinner awaited us.

Graham's brother Gary joined us in the afternoon, and we eagerly awaited our Thanksgiving feast. Gary and I had ordered a guest meal, which they had labeled "Chef's choice." We took it for granted that it would be some kind of lavish turkey meal, so imagine our surprise when we found on our plate something that looked suspiciously like meatloaf. But no, it wasn't exactly ground beef, it was sort of in pieces. We still haven't determined what it was, but we knew for certain that it wasn't turkey. Turns out that the lunch was the turkey feast, and dinner was, well, a mystery. I did some pitiful pleading, though, and the kitchen kindly sent us some stellar turkey sandwiches. Gary had brought some cranberry relish and other goodies from his friend Jan, so in the end, we had our traditional meal. (Thanks, Jan!)

Hard to be fully joyful though on a day full of such terrible news about the terrorist attack in India. But we can be thankful that we live in a culture that cherishes freedom, life and intellectual curiosity, in contrast to the brutish culture of the totalitarian militant Islamist supremacists.

While we're sad for all the victims and their families, the attack against the Chabad house (the "Jewish Center") hit us more viscerally. Graham has relatives, Goldie and David, who are Chabad Lubavichers, and we remember the wonderful Sabbath dinners they would invite us (and dozens of others) to share at their home.

What the news reports haven't really explained is that Chabad doesn't seek to convert non-Jews; their goal is to bring Jews closer to Judaism. So they set up these small "centers" which are really nothing more than a home with a big dining room table, where Jews know they can go to find warm hospitality, services, interesting pressure-free discussions on topics such as kindness or how to live a meaningful life, and a fantastic Sabbath dinner with lots of singing.

Gavi and Rivka, the young rabbi and his wife who were slaughtered, left their family and friends in the United States to provide hospitality and synagogue services to Jewish backpackers and business people traveling in Mambai. It's totally pathetic that the Islamists would specifically target them. "That rabbi's wife cooks a tasty chicken. She's gotta go." But I guess killing Jews will ensure that the attack will be celebrated by many in the Muslim world who have been brainwashed to think of all Jews as evil. Sad, sad, sad that basically good people can be "educated" to believe such nonsense.

In memory of Gavi and Rivka and the many other victims, let's do an extra act of hospitality this week. Invite a new neighbor to dinner...go chat with an old neighbor you haven't seen in a while...send a Christmas or Hanukkah card to a soldier...roll your neighbor's garbage can back to his garage after garbage pickup...I'm gonna go chat with more of our "neighbors" down the hall.

Tuesday, November 25, 2008

Nurses to the rescue!

Thank goodness we're not at home. Graham woke up early this morning in terrible pain. His catheter had become blocked, which caused a lot of bladder pain. I informed the Manor Care staff of the problem, and the nurses came running. He was given pain medication and a new catheter was quickly and relatively painlessly put in. If we had been at home, we would have had to call 911 and go to the ER. It would have been a horribly painful long ordeal getting it fixed.

Graham did fantastic in physical therapy today! He has made such progress, his therapist Cathy actually cried (out of joy). When she first started with Graham, he couldn't even sit up without flopping over. Now he can balance himself pretty well and move his arms all around at the same time instead of holding on to the bench for dear life. And he's getting faster and faster with his handy dandy sliding transfer board, or whatever the heck those things are called.

We're looking forward to Thanksgiving. Gary will join us for the dinner, and friends John and Erika will come for a visit. Graham will have a break from radiation that day, so I'll have time to go get little Micki and have her stay with us for the day. We haven't seen her for almost two weeks. We can't wait to see how her whole body wiggles with happiness when she first sees us.

What is sort of weird with dogs, though, is that they're just as relieved/excited to see you after you've come back from taking out the garbage for five minutes as they are when you've been away on a two week vacation. Strange but true.

Although if she follows her usual pattern, Micki will be unhappy to leave our friend Alice's house. Alice cooks chicken and hamburger for her dog and Micki. I only give Micki dry kibble. You can imagine Micki's look of disgust and dismay when she sees the return of her bowl of dry dog food. She looks at it, then looks at me pleadingly, as if to say, "Noooooo!! I want the good wet stuff that Alice gives me!!!! PLEASE. Look how cute I am. Please??" When I don't relent, she looks at the dry food again, and then just sort of sighs and mopes away.

We wish everyone a very happy Thanksgiving Day! We're so thankful for all of our wonderful family and friends who have shown us such amazing support and love. And I'm so thankful that I still have my handsome sweetie here beside me and that he's still happy to be alive.

There's this awful moment every day when, after Graham wakes up and eventually comes out of dreamland, he makes the realization that he's (at least for now) paralyzed from the waist down. You can see him rapidly going through all these emotions ("What the heck is going on here? I can't seem to sit up or move my legs. Holy crap. I can't move! Oh my gosh, I remember now. Oy. Oh well, it is what it is. " ) and then, one little tear starts to roll down his face, but then he literally grits his teeth, quickly wipes the tear away, and gets on with his day.

So, it's not that he's oblivious to his condition. He just chooses to spend his time focusing on what he can do to make progress rather than on what he's lost. True to form, he enjoys the physical challenge of it. Most people hate physical therapy; Graham LOVES it. :-)

Saturday, November 22, 2008

Manor Care

Manor Care, the rehab facility in Sunnyvale, is very lovely. We feel like we're at a posh hotel with congenial room service at our beck and call 24/7. We're in a double room, but there's no roommate yet, so I've been able to sleep here, which is great.

He met with one of the physical therapists today and worked on how to safely get out of bed and into a wheelchair. So much easier when you know what you are doing!! With the right techniques and equipment, it's totally doable with even just one helper, and not even a big hulking one. When we tried this at home, we were so clueless. What surprises me is that the visiting nurses and home health aids that we had hired were also clueless. For example, the wheelchair they had ordered for him...totally wrong kind since you can't take off one of the arms to slide into it using a sliding board. Lesson learned: train with the professionals before attempting at home!

Don't know what to think about progress of radiation. Graham is able to scissor his legs back and forth very nicely, but hasn't been doing as well lifting them up. Time will tell.

We enjoyed visits today from Gary, as well as Ellen, Rick and Zack. Gary had just received several boxes that he had packed when he was clearing out his and Graham's mom's place after her death. He brought over some of his mom's paintings and sketches for Graham to look at, as well as some old correspondence of theirs that their mom had saved for years. It's always fun going down Memory Lane.

Graham is right now choosing his menu selections for the next week. So far, the food has been pretty tasty. But he doesn't have much of an appetite and is forcing himself to eat. Although he will always eat ice cream, so I make sure to have that on hand for him.

Here's our new contact info for the next couple of weeks:

Graham Green, c/o Manor Care
1150 Tilton Drive
Sunnyvale, CA 94087

And you can reach us on my cellphone: 650-242-2265.

From all the pain medication, or maybe just from whatever cancer is left in his brain, Graham sometimes wakes up very disoriented. Also, when he's very tired and just about to fall asleep, his words don't always make sense.

Today he woke up trying to get out of bed, forgetting that he would fall flat on his face. Oh, the interesting conversations we have when he's in utter la-la land! But then, after a few minutes of that, he either wakes up and snaps out of it, or gets some needed sleep.

So if you have a chat with him when he's sleepy, don't be surprised if the conversation takes an odd turn here and there!

Thursday, November 20, 2008

Sleepy Day Today

Graham slept almost the entire day. Par for the course when it comes to getting radiation. The exhaustion kicks in after a few days. But around 6:30pm, he finally started to perk up. He's in good spirits. And he was able to use his inner thigh muscles today, so that was a good sign.

We thought we would be going to Manor Care in Sunnyvale today, but it took longer than expected to get all the insurance approvals for the ambulance to take him there, as well as to and from his radiation appointments at Stanford each day, so he's staying another night at Stanford, which makes us very happy. They take great care of Graham here.

I have to put in a good word for Aetna. They have never refused anything a doctor requested. They even have folks call us every now and then to ask if there is anything more they can do, are we happy with the medical care we are receiving, etc. Aetna rocks!

Graham gets radiation in the morning and will go by ambulance to Manor Care at 1pm.

Wish us luck in the new place!

Wednesday, November 19, 2008

Going to Rehab Thursday Morning

Graham is going to leave Stanford Hospital in the morning and go to a lovely rehab place called Manor Care in Sunnyvale.

Our insurance allows for 5 rehab places in our vicinity. I explored the 3 that people at Stanford generally recommended.

The first one, Lytton Gardens, was DISGUSTING. The only thing it had going for it was that it was close by in Palo Alto. It was so clearly mismanaged. There was debris lying around, signs missing...the place smelled really really bad, hadn't been renovated possibly ever, and there was not a bit of cheer or professionalism anywhere in sight. Their rehab room was a joke. The patients' rooms were unrelentingly depressing and gross. I would send the terrorists in Guantanamo Bay to live in Lytton Gardens. The conditions there would make them talk pretty darn quick. They would long for the good ole days back in Guantanamo.

The second place, Los Altos Sub Acute, seemed decent to me when I first visited it yesterday.
But I think it was just not as horrible as Lytton, so it seemed better than it was. When I went for a second look today at a different hour, it seemed more Lytton-like. Their rehab rooms are very well equipped and staffed, but the living quarters are very depressing. And it was so LOUD and crowded in the rehab rooms in the morning. Graham would hate that.

The third place, Manor Care in Sunnyvale, is lovely. It is very professionally run. It's obvious that they pay attention to details and care about quality. The rehab rooms are well equipped and orderly. They have excellent statistics for the percent of patients who improve in various ways after getting rehab training at Manor Care. It's generally very quiet and serene there. The patients' rooms and lounges are nicely decorated and pleasant. The food looks and smells good. Everyone I spoke with seemed happy to be there. Patients had good things to say about the staff, the rehab and the food. Spouses and daughters of patients were quite happy with the service their loved ones were receiving. The staff has mostly all been there for years, which is a good sign of a well-managed place. They have a decent staff per patient ratio. And I saw a housekeeper scrubbing the outside of a trash basket. Sweet!

The room that is available for Graham right now has a window that overlooks a lovely green area with a beautiful tree and bird feeder. It's a tiny room though, and it is a double. Although right now there's no roommate. His half of the room is so small, there's hardly any room for me to even sit by his bed. Micki can hang out with us during the day, but there's no space for her little doggy-bed. They told me that a private room would hopefully open up in a couple of days, and I can pay $75 extra a day for it, which I am more than happy to do. So hopefully a private more spacious room will become available very soon, or Graham and I will learn what we need to learn super quick, and just go back home. I just don't want Graham to feel rushed. They expect him to need at least 3 weeks to learn how to be as comfortable and safe as possible. Then we can go back home.

THANKS: Thank you so much, Shoma, for the pretty flowers!! That was so kind of you. We appreciate your thoughtfulness.

Genentech Folks Send Their Love

Graham had a very mellow day. He was so touched to get a DVD that his co-workers at Genentech had made for him, filled with nice comments, encouragement and interesting updates about people there. A big thank you to Analynn, who made the DVD, and to all those who participated. We really appreciate your thoughtfulness!! And the snacks you sent with the DVD were fun too.

Kim, thanks for the lovely note about how Graham made a difference in your life. It really meant a lot to him.

Laura, thanks for the cheerful balloons and for going to the bank for me. That was so helpful.

Chuck, thanks so much for reattaching that persnickety pump hose in our front garden's fountain. Graham likes his garden looking good!

Joni and Bernard, that was so amazing how you found someone in the hospital to bring Graham some freshly baked, hot from the oven, chocolate chip walnut cookies. Delicious! How did you do that from Florida??

Elliot and Connie, you always find a way to bring delight to our day. Thanks for having Hagen Daz ice cream delivered to Graham's room. Total yumminess!

Alice, thanks for picking Micki up from Pam's and having her stay at your house for the rest of the week. It's so nice of you both to give Micki a home away from home. I'm glad she and your dog, Happy, are having a good time together. I hope Micki doesn't eat all of Happy's food!

Jimmy and Dick, we enjoyed your visit (and the Ball of Whacks). It's always interesting hearing about your latest activities.

Lynn, thanks for the latest beautiful drawings you made for Graham.

Marilyn and Norm, thanks so much for visiting and bringing me homemade food as an alternative to the hospital's cafeteria food. The tomatoes from your garden were so tasty. And we continue to enjoy your beautiful roses.

Gary, thanks so much for the comedy DVDs and for staying with Graham while I explored the rehab places.

Monday, November 17, 2008

Physical Therapy

Good news! The new pain meds worked great, so he felt no pain while he was being moved around. AND Graham was able to lift his right leg significantly higher than the day before. He also did some work with a physical therapist and was able to move around better in bed. This means that there's room for improvement and they recommend that he go to a rehab place to learn how to be more mobile and comfortable.

So today I'm going to explore a couple of rehab places.

Occupational therapist is here now, so gotta go!

Sunday, November 16, 2008

Radiation Helping

Graham is feeling very mellow and comfortable for the most part. Just about the only time when he has pain is when he needs to be moved from his bed to have radiation treatment. Getting moved onto the table and in various positions - ouch! It really hurts his spine where he has the tumors and compressions. He has two areas on his spine where the cancer tumors are compressing it, one that affects his legs and the other that could affect his arms. Oddly, the much bigger compression is on the part that controls the arms, but so far, he still has good use of his arms. And hopefully with the radiation treatment, he always will.

Yesterday, they told us to make sure Graham had extra painkillers an hour before his radiation appointment. We gave him 50% more. But it wasn't enough. And because it was Sunday, and they opened the department just for him (thank you Dr. K and Dr J!!) as an emergency treatment, there were none of the usual nurses or drugs available there. But then I realized, YAY, I have liquid fast-acting morphine in my purse for him! As I reached for it, I then realized, aaaarrrghhhhhhhh, it was actually still in the hospital room - out of the cancer center, across the courtyard, into the next hospital building, down several long hallways. Well, you can imagine how bad I felt for not thinking to bring my purse with me. Oy!!!

So off I zoomed, regretting what a slow runner I am and pledging to get back in shape as each hallway loomed longer and longer. I finally got back after what seemed like an hour, but was probably only 10 minutes. Thankfully though, his pain had subsided after a few minutes and he was doing fine and didn't need any further pain medication. Needless to say, we're going to give him the mother of all painkillers tomorrow AND I will absolutely positively have the liquid morphine with me.

The doctors hope that after about a week of radiation, we may see improvement in Graham's ability to lift his legs. They're hopeful that the paralysis can be reversed in some measure because he's able to wiggle his toes and lift his legs a tiny bit, which he couldn't do when he was first brought in. Also, he feels less numb in his thighs.

Graham is staying in a fabulous private room because they expect the radiation to drop his white cell count. He has a really exquisite view of one of Stanford Hospital's finest gardens. And he has a special bed that can be adjusted infinitely and is super comfortable. His nurses have all been cheerful and competent, and it is soooo great having plenty of staff around when he wants to change position or get out of bed. Because he's still in pretty good shape, he's a heavy guy, so it takes two people to even just move him up a bit in the bed. And when I say two people, I mean two strong people. When Gary (Graham's brother) and I tried to lift Graham up by ourselves, it was a disaster. Gary was plenty strong, but I just couldn't keep up.

As usual, Graham is in good spirits and has a ready smile, and even when he's floating a bit with pain meds, he still makes sure to chat with all the helpers.

Gary has been a constant support, staying with us at the house giving invaluable help, and now that Graham is in the hospital, he visits every day, bringing cheer and humor into the room.

Ellen, Rick and Zack came to visit today, which is always a pleasure. For those of you who have wondered about visiting, the afternoons or evenings are best. Right now he's in Room E42. Just give us a call first to make sure he's not napping or something. The phone number for his room is 650-498-3035.

I have a comfy cot beside Graham, and since our wonderful neighbor Pam is taking care of Micki, I don't need to go home. So to all of the sweet people who have offered to bring us delicious dinners, we won't need any food while we're at the hospital, which I think will be for several more days.

THANKS for all your great emails, cards and calls.

Saturday, November 15, 2008

RELIEF!!!

I'm just home for a quick shower, so I can only give you a brief update. Graham went to the Emergency Room on Friday because the paralysis had gotten drastically worse. They had a wonderful crew of doctors there that night.

It was determined that since the paralysis was advancing so rapidly, it would be bad to wait until Monday to do chemo, that immediate radiation would be the best thing to do. And radiation would also hopefully prevent Graham from losing function of his arms, since that area of the spine was also being compressed.

They also gave him a boatload of steroids to reduce inflammation. Graham can already move his toes more and lift his legs a tiny tiny bit. And that's just the first day!

He'll likely be at Stanford Hospital for 4-5 days. I'm so hoping that he will be able to walk out of Stanford on his own two feet.

THANKS:

Thank you so much, Pam F., for taking care of Micki while we're at the hospital!!! It was so kind of you to offer on the spot when you saw the ambulance at our house.

Wendy T., the challah you brought us was both delicious and incredibly handy. As I was running out the door to the ER, I grabbed the challah, and since we were there from 7pm until 5am, it gave us sustenance.

Elaine H, thanks for the delicious package of goodies! I'm going to bring the treats to the hospital so Graham can enjoy something besides hospital food.

Thursday, November 13, 2008

Don and Eli - Master Ramp Builders; Chemo on Monday

Before I even had a chance to look at Angie's List for a ramp-builder, two friends offered to build it for us. It's hard to bemoan buying our house at the top of the market when it came with such great neighbors. :-)

Building the ramp was magical. Don H came by at 8am to measure the space and design the ramp, and then spent the morning getting the supplies and cutting the boards. Shortly after Don had to leave to go to work, Eli B. came by. He cut a few more items and then put all the pieces together. Don and Eli made a wonderful team without ever even meeting each other, and the ramp was done by 2:30! The ramp works very smoothly, and Graham was so relieved to be able to get outside of the house easily. Thank you, Don and Eli.

Graham continues to surprise me. It's nice when a spouse can still surprise you after 20 years. The man can't even feel his feet, can't walk, can barely stand for more than a few seconds, but he insisted on getting on the exercise bike today. And he rode! Not quite a mile, but he rode. Hey, it's more than I did today!

The good news is that the lab results are back and Graham's white cell count returned to a decent range and he can have more chemo on Monday. If we're very lucky, maybe the chemo will reverse what's happening with his legs.

Today was exhausting for everybody. We had several nursing agency people over to advise us on how to best make Graham comfortable. We stocked up on all kinds of cool medical supplies, like a hospital bed and a shower seat. They have an infinite number of clever devices to help make life easier if mobility is a problem.

But there's just no easy way to "transfer," that is, to get someone from a bed to a wheelchair, or from a wheelchair into a regular chair. If Gary hadn't been here to help, it would have been really hard.

Starting tomorrow we're having a home healthcare aid come in for a few hours a day. She'll help us with the transfers. Not quite sure what else she'll do, but no doubt we'll think of something.

THANKS:

Sarah J and Barry W, your chocolate chip cookies were sooo good. And Hannah W, we love your artwork. It's hanging on our refrigerator.


Hannah W's artwork for Graham

Thank you so much, Joel F, for your wonderful note and stunning flowers. They were a real day-brightener. Your florist is an artist.

Teree F, how delightful to receive a jar of honey from your husband's bee hive! And the Hebrew prayer plaque is lovely.

Jerry and Marie, thanks so much for the very pretty and exotic flowers. Graham really enjoyed their beautiful scent.

Ella, we couldn't resist your apple pie. It's almost all gone already!